The Fear of Diabetes Complications Linger in the Background

Yesterday, in a bit of a panic, I reached out to friends and family because I was scared, really scared. The ugly cry kept me from sharing my real fears – was it just a gallbladder episode or something worse? Within an hour, I was headed to the ER, but not before packing a bag – insulin, needles, pen needles, extra sensor, skin tac, tester, test strips, healthy snacks, low BG snacks, journal, phone charger and head phones. (more…)



Amber is Pleasantly Surprised by her Home A1c Test

I was pleasantly surprised by the result and contacted the founder of the machine… He shared the home test airs on the side of being a little low – BUT what the hell – I will take it.

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June Real Life Diabetes Happy Hour – Joplin, Missouri

I’m packing up the Subaru and heading to Joplin, Missouri to attend the Stick It To Diabetes fundraiser hosted my the Mercy Foundation. What better way to bring PWD together than a happy hour? (more…)



I Am Perfectly Imperfect

I’ve been holding onto this post for awhile, but while geeking out on Netflix documentaries, I stumbled upon Brené Brown’s – A Call to Courage. Damn her! I’ve been a huge fan of Brené and find she pops into my life exactly when I need her. It is time for me to be vulnerable… (more…)



A Look Back at What I Learned and/or Overcame in 2018

It has been over a year since I last shared a post, but with two snow days I had plenty of time to reflect on what the past year has taught me. 2018 was full of new challenges, many of which were diabetes related. After 35+ years of living with T1D, you would think I’ve dealt with it all, but that is not the case. Below are a few highlights, lessons learned and things to ponder.

    • I became a Dexcom Warrior and had the privilege of trying the new G6 before it was released to the public.
    • I shared my T1D story, per the request of the Oklahoma Diabetes Legislative Caucus, to insurance providers in an effort to change future coverage for people living with the disease. It worked. Report to follow in a future post with my testimony.

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A Healing Mission’s Unexpected Result

Photo: Ashley Batz

How does chronic disease inspire me? I love my life, regardless of the type 1 diabetes I’ve shared my life with for the last 46 years. Yet, there are a few things about type 1 diabetes that I do mind: (more…)



Sometimes, I Just Don’t Want To Be Anyone’s Hero

 

We’ve all heard it before: wow, how can you do that? You’re so strong. You’re so brave. You’re so courageous, ad nauseam. I have people staring at me while I take insulin injections, like curious little puppies trying to get the best view. We’re hailed as warriors, and that we should strut around like diabetes is a badge of courage on our arms. AND it IS difficult; it’s the most difficult thing I’ve ever done. (more…)



Diagnosis Day Was A Total Relief

When I was diagnosed with Type 1 diabetes, my first feeling was perhaps different than you might expect: relief.

The months leading up to my diagnosis were some of the worst of my life. I had been flying from Washington DC to the West Coast and back on a weekly basis, and I thought the constant red-eyes had finally gotten the best of me. I was battling fatigue, circulation issues, and weight loss, and I could barely get any sleep. I just felt awful. (more…)



The Best Feeling in All of Diabetes

In regards to feels, diabetes provides an endless supply to the senses. We become numb to the finger-sticks, with an occasional 1 in 100 resulting in a real sting. To an extent, injections and pump site changes become familiar or at least expected. With respect to the most commonly asked questions of people with diabetes, here’s another addition to the list: does that still hurt? My response usually follows these lines: Well, no. It’s still the same pain I’ve always felt, but now I’m used to it. With most of our emphasis on our acclimation to these not-so-positive sensations, the single best feeling in the diabetes world remains unexplored and never taken for granted. (more…)



A Path Toward Releasing The Number (Wait, Is This Possible?)

We’re an analytical bunch. Numbers flow through our brains alongside most thoughts. Numbers can dictate our emotional states–ever been feeling great, get a blood sugar, see it’s at 250, and then start to feel high? That blood sugar number courses through everything we do, everyone we meet, and everything we think. But, does it have to? (more…)