For all of us, this was a new season. In the time away from each other (less than a year), Mark has moved back to Northwest Arkansas, started a new job with Medtronic, and committed to a diabetes life with the new 670G insulin pump. And, as expected, the conversation went off the rails from the anticipated agenda and into even realer subjects: sex, sleep, and Chick-Fil-A.
- Mark’s first podcast appearance.
- Mark’s second podcast appearance.
- Sugar Surfing with Dr. Ponder
- Medtronic 670G
- Decision fatigue (NY Times article we’ve referenced a gazillion times with Mark)
- Abbott Freestyle Libre
- Dexcom G6
- T1International #insulin4all
- Check out our theme song author – Mike Hosty
LOL – wait until you hit the menopause years! As a T1D of 52 years, it’s like I’m a teenager again … except I have more tools to “try” to stay in the range. Boo! Haa! Haa! Great podcast everyone … and belated Happy New Year! Okay, back to listening about the 670G.
FatCatAnna – Thank you so much for sharing or over sharing what women with diabetes have to deal with. I’ll never forget a woman (my algebra teacher in high school) who was diagnosed with T1D in her forties. She happen to catch me on a day where I had back to back lows (sweating, confusion, etc.) while hosting a big event. She shared that menopause would be nothing because a serious low was way worse than a “hot flash”. I guess that is good news… Amber
Loved this episode with Mark! My daughter is almost 18, and headed to college. She’s always been a Medtronic user and adopted Dexcom early. She lives in two homes with three parents. She’s been a medical mystery her whole life. Diabetes scared us enough (hyper sensitive to activity, no shake or sweat during lows while asleep and no waking to alarms) that we never slept. Not a single night went without a parent check. 6 yrs, 3 mos.
She’s been a 670g user since Halloween 2017 and continues to wear Dexcom because of share/follow. Dexcom saved her life on many occasions! Like Mark, 670g has drastically reduced overnight lows (Dexcom alarms are now few). Until Medtronic has a share/follow, she’s sticking to wearing all three.
Much of her medical mystery was solved a few weeks ago, as her sleep disorder was finally diagnosed Narcolepsy. She has Dysautonomia from Ehler’s Danlos Syndrome, hypermobility, and we never put it together that’s why she’s such a squirrely T1D. The two most important symptoms – the ones that wake you up – are the ones she doesn’t get through autonomic nerve response to a dropping BG. There is no cure. We get a cure for T1D and she won’t need to be worried about it!
While we were at our Children’s for the sleep/nap study, endocrinology wanted full control. AND, she’s a 670g user, so we knew she was good, but they didn’t! Thank God they didn’t take it away. We used their meter, our meter, read Dexcom and read Guardian. Neck and neck with all! The Guardian is quite reliable (although I really dislike the taping sitch). The red tape was difficult every hour we were there. We talked tech for nearly two hours with the nurses while we were there, them marveling at our knowledge and experiences. Tech updates sound like a good continuing ed class, right?
I agree… it’s going to be a while before the rest of healthcare catches up to the knowledge we push ourselves to know, understand, and adopt.
Lane got direct admit to a coveted spot in the Univ of Cincinnati’s nursing program!
Love the show!
A message from Mark: I’m always encouraged when stories shared help others remember they are not alone. Lane is a diabetes ambassador to others and hopefully will continue to challenge the healthcare world, while being a nurse!!! Thanks for the feedback!